Comments on green words growing: ME/CFS, XMRV, XAND, etc

Hi Joni, it sure will be interesting to see what t...

2009-12-03T10:54:35.111+10:00

Hi Joni, it sure will be interesting to see what the future brings as far as research. Glad to hear of your slow improvement. Long may it continue.

I know what you mean Signs, it can be hard to keep up with what's going on.

Alyson, thanks for stopping by, I see you've been having a rough time lately, hope things look up for you soon.

Hi hip, I have

I don't see why a "21 day incubation period would ...

2009-12-03T08:42:13.534+10:00

I don't see why a "21 day incubation period would prevent XMRV from creating an epidemic" (to quote Dr Byron Hyde above).

Incubation periods can run from half a day to sometimes several months, but this time surely cannot have much bearing on whether a microbe becomes an epidemic in a community. Factors that do have significant bearing on whether a microbe becomes an

Thanks for this summary! It included videos and qu...

2009-11-24T11:50:22.938+10:00

Thanks for this summary! It included videos and quotes I'd not seen/heard before.

Thanks for doing all this, Greenwords. I find it ...

2009-11-18T21:25:09.717+10:00

Thanks for doing all this, Greenwords. I find it very difficult to keep up with all that's going on.

Hi there, Yes, I've heard about it, mainly through...

2009-11-18T05:30:38.282+10:00

Hi there,
Yes, I've heard about it, mainly through Facebook... it was big news indeed, although I did not look into it myself thoroughly. Thank you for sharing !
I am so curious whether one day they will find a good and meaningful "classification" of various subgroups and degrees of illness and impact on life...13 years of full-blown ME slowly improving... Wish you well

Thanks for that other link Priscilla, I added it t...

2009-11-15T20:38:36.636+10:00

Thanks for that other link Priscilla, I added it to my shared items as well. I have actually been watching the CFSAC footage recently...in small doses though, because it makes me hopping mad.

Hi Emma, thanks for dropping by. I'm really sorry to hear about your health. I hope you get a clear diagnosis soon one way or the other - it must be enormously frustrating not to know what&

Hi, I'm also doing my best to be optimistic about ...

2009-11-15T19:47:27.677+10:00

Hi,
I'm also doing my best to be optimistic about these findings, however I've just read Dr Hyde's response to XMRV : (http://www.nightingale.ca/documents/GoteborgConference.pdf)
Unfortunately he doesn't explain what he thinks the connection with XMRV is - and clearly there must be some connection.
I feel almost as confused as ever!

I'm not sick, but I know someone who is, and I fol...

2009-11-14T17:10:25.922+10:00

I'm not sick, but I know someone who is, and I follow this kind of news. The day after they made the grand announcement about XMRV, two people with no connection to ME/CFS except me asked if I'd heard about it.

That's never happened before.

Hi, really interesting...I hadn't heard about th...

2009-11-14T07:27:52.139+10:00

Hi,

really interesting...I hadn't heard about this. I have a type of CFS that doctors aren't sure is CFS at all, they don't really know what it is...so I'd be surprised if I fit into this category but will look it up anyway.

Thanks!

Emma

That's an excellent round-up; must have been a lot...

2009-11-14T07:04:20.422+10:00

That's an excellent round-up; must have been a lot of labor to put it all together. I highly recommend this video as well: http://www.youtube.com/watch?v=4p6kcBdSsAc

It isn't about XMRV directly but the institutional and governmental (in US) obstacles to progress on ME/CFS.

I've been wondering what you think of the XMRV news, and I'll be curious to hear