Greg PageThe above links to an interview with Greg Page (retired Wiggle) about his experience with orthostatic intolerance. It’s fantastic that he’s speaking about it – I can’t tell you how helpful it is for the rest of us – he’s doing a great job in Australia for public awareness. I was speaking to disability services on the phone recently and they actually knew what I was talking about. He’s also started a research fund. Thanks, comrade Greg.
“I thought I must be getting unfit…
I’d be told that ‘you’re really healthy, there’s nothing wrong’…and you’d think, well it must be OK, or my imagination, or just something that’s not a real issue so just push through it…
I couldn’t walk properly, I’d get off balance, I’d walk into walls…”
I think many of us can relate to being told we’re totally fine when we’re as sick as a dog. Plus it’s always heartening to hear someone else talk about walking into things. I have bruises in the strangest places. Oy.
There’s also an earlier interview here. I thought I’d already mentioned it, but I searched my blog and there’s no sign of it.
OI is extremely common in people with M.E. See also my previous post here with links to further info at the end.
6 comments:
Thanks for visiting my blog. When new people comment, the best thing for me is finding new and interesting people and blogs to read.
PS Greg was always my favourite Wiggle.
This is interesting, I didn't realise orthostatic intolerance was an illness in its own right, I thought of it more as a symptom of other illnesses, like ME of course. Poor guy, it seemed really severe.
Hi tiff, thanks so much for dropping by, I always like to find new blogs to read, too. Glad to hear your Wiggle loyalty is in the Greg direction!
Hello there nmj, I agree, it is interesting. He seems like a really nice man. Of course I'm sorry he's so ill, but grateful that he's doing such a sterling job to promote awareness.
i miss having greg in the wiggles he was always my fav and still is same with my little sis she is only 4. i hope sam gets better at bing a wiggle
Hi Greg! My daughter has a rare gene disorder and has enjoyed listening to you. You that is. She loves the Wiggles and you have helped us through tough times. She will be 8 this year, thankful we have had her this long. She doesn't care for Sam and the new sound. So we watch all the old stuff over and over and we have a doll of you that talks. We have to have Greg with us all day. I wish you well and want to thank you for touching our family! We love you.
The Ballard's in Florida
Hello to the Ballard family in Florida! I'm glad to hear how much the Wiggles have helped you. Just to let you know, this isn't Greg's site, just my blog. I often mention him in posts because he's doing such a great job to raise awareness of orthostatic intolerance, which I also have. But I will certainly try to find contact details for him and forward your lovely comment to him so that he receives it. Best wishes to you.
(Greg's website is www.gregpage.com in case anyone else is after it.)
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