Tuesday, 20 March 2007

Autumn

The calendar says Autumn. The humid thirty-something days still say Summer. When I step onto the floor, the boards are damp underfoot. The air throbs with heat and moisture, and cicadas blare their approval.

External markers of time are perplexing. They seem out of kilter with my own experience. My body is paused, frozen in a season of its own, yet the earth continues its rhythms. The seasons turn, the moon rises, the sea wishes and washes, nothing is forever. I hold this in my mind and hope this relapse breaks soon.

There have been other relapses, too many to count. But this one is protracted. Several years in I’m starting to wonder: is this the new normal?

I was carving out a small, slow life for myself. I thought I was through the worst, that I’d never return to the long years of severity I had at the start. I thought the cycles of life had picked me up and deposited me in a place further along, that I could never go back there. Now I understand that the trip backwards can be fast, and the way out is slippery.

I want to hit the stop button on the outside world so I don't miss anything while I lay here, try to be patient, fail to be patient. I am always ready. Here in my season of waiting, I am ready.

8 comments:

  1. greenwords, your descriptions of severe ME always move me, and sometimes i don't know what to say, but i need to say that i have read your words and that i want to salute you again and again and again x
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  2. Greenwords,
    I have been reading your blog for months now but not said hello before. I want to thank you for writing it. I'm in a very similar situation to you, having had mainly-severe ME for 16 years, since I was a teenager. i've got worse over recent years and am currently bedbound. Your writing expresses so eloquently how it feels to live with this illness. I too, am living in a "season of waiting". I try to hold onto hope (though patience is bloody hard as you know), and my desire for life despite/beyond being so physically trapped. Reading your blog helps me feel less alone in this situation, and the fact that you manage to write so well when so ill is inspiring. As nmj says, i salute you. And let's hope that one day the seasons will shift again.
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  3. Your words move and speak to me too, and what a fine writer you are. Please keep doing this. You are giving the rest of us more than you may know.
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  4. I feel for you so much. I've been there too and, as before, your writing takes the words out of my mouth that I could never quite put together myself. It is excruciating living life at a glacial pace. Horrifying when a plateau of functioning you thought you'd never fall below again gets breached and drops you into the abyss of severity and unknowing. Just thought I'd say, though, that I too entered a degree of relapse I thought I would never again return to about 4 or 5 years ago. It lasted over a year. But since coming out of it there have been spells of improvement and glimpses of renewed energy that were not there before. I wouldn't exactly call it recovery, but I certainly entered a new phase after that horrific spell and have had moments of hope that indeed, things are never static and my body might be meandering its way to some kind of slow (tortuously slow) improvement in health. I send you all my love.
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  5. Fighting FatigueApr 1, 2007 02:32 PM
    Your writing is very moving. I have had ME/CFS for going on 20 years and it never gets easy. I just started a new forum I wanted to share with you that I started to offer support to those with ME/CFS, Fibromyalgia and other chronic illnesses. It is www.fightingfatigue.org/forum.
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  6. Springtime here, but my small garden is untended, seeds await sowing, and I'm spending most days in bed. Hope that you see some improvement soon. Mostly I do better in the summer (though summer here isn't particularly hot or humid usually). I know I go to pieces in humid weather, maybe you'll have a bit more energy when it's cooler?

    Best wishes from Liverpool
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  7. Happy Easter, Greenwords. I hope you are given a measure of strength and that you will be able to post again soon. Spring is every day unfolding from my window here, as you are surely moving deeper into autumn and hopefully cooler days.
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  8. Thank you so much to everyone who took the time to comment on this post, a special hello to all readers old and new, and a general apology for being so bad at replying to comments. I do appreciate them and read every word!
    ReplyDelete

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